Something positive to share! My baby Grace was born at 32 weeks at 1.8kg last Thursday. She is able to breathe on her own and just needs to be inside the incubator to grow bigger. This is the best part, I am born with half a heart and hence was
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Michelle Keeffe-Mcguinness
Our little man Hilton spent 6 weeks in the NICU surrounded by some of the most amazing and supportive people I have ever met. Hilton was born at 32 weeks and is now a healthy and strong 3 month old baby. It was an experience I would never want to
World Prematurity Day – November 17th
Mark it in your diaries ???????????? In 17 days’ time we will be celebrating World Prematurity Day with many amazing premature baby support organisations across the globe, including EFCNI and The Australasian Nidcap Training Centre. The theme of this year’s day is “Working together: Partnering with families in the care
PREMATURITY ROADMAP: PARENT INFORMATION SESSION – PRETERM BIRTH AND THE AUTISM SPECTRUM LIVE FACEBOOK PRESENTATION
What do we know about autism spectrum disorders in children born preterm? Join us for our second Facebook live, question and answer session in partnership with our experts from the Murdoch Children’s Research Institute (MCRI) and The Centre of Research Excellence in Newborn Medicine (CRE). Tuesday, 13 November 2018 10:30
NICU Food from the Heart Program Launch
The Foundation is very excited as today it launches a new program called NICU Food From the Heart ~ it’s a loving program that will provide support to families of premature & sick babies staying in the Neonatal Intensive Care Unit. Families of premature and sick babies can spend days, months and
Medela Voucher
Our good friend and longstanding partner Medela would like to further support us and the members of our community by offering an amazing 25% discount to families of premature and sick babies when you purchase any item from Medela’s website. 10% of all sales will be then be donated back
The 1000 Hearts Project
Calling All Crafters Michelle over at NICU FOOD FROM THE HEART needs your crafty fingers for a new initiative – she needs a 1000 small hearts sewn and donated. She really wants to include these hearts into each gift she donates to families…and to start with, her goal is a 1000
Can you help us better understand relationships and approaches to parenting? Take part in this important survey
What is the study about? You are invited to participate in a study of parents who have had a baby (or babies) born prematurely in an Australian hospital. Researchers from the La Trobe University hope to learn more about some of the factors that might be associated with relationships between
Breastmilk Expressing
by Wendy Taverna My surprised introduction to expressing started 12 hours after my daughter Sophie was born by emergency C-section at 24 weeks. Initially I was stunned when the nurse asked me had I considered if I wanted to breastfeed her. My initial thoughts were consumed on ‘was Sophie going
Weaning program for tube dependant children
NoTube LLC (www.notube.at). Notube is the first website offering an effective online medical coaching service(netcoaching program) for children with early eating behavior disorders,particularly tube dependency. The Netcoaching program is based on the “Grazmethod of tube weaning”, through which more than 1000 tube dependent children over the past 20 years have been